The Nihei's: Our Story

On April 1, 2008, our 4-year-old daughter, Lauren, was diagnosed with a brain tumor. After her biopsy on April 8th it was determined that she had a bithalamic anaplastic astrocytoma with extension into her brain stem.

In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.

A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...

Story continues at bottom of page

Tuesday, September 15, 2009

From Hilary:
September is Pediatric Cancer Awareness Month. So, I’d like to share the stats about childhood cancer with you:
*Each school day, 46 children are diagnosed with cancer.
*On the average, 12,500 children and teens will be diagnosed with some form of cancer each year in this country.
*One in 330 children will develop cancer by age 20.
*Although the 5-year survival rate is steadily increasing, one quarter of the children diagnosed with cancer will die 5 years from the time of diagnosis.
*Cancer remains the #1 disease killer of America's children - more than Cystic Fibrosis, Muscular Dystrophy, Asthma and AIDS combined.
*The causes of most childhood cancers are unknown and at present cannot be prevented.
*In the U.S., almost 3,000 children do not survive cancer each year.
*Over the past two decades, only ONE new cancer drug has been approved for pediatric use.
*Currently there are between 30-40,000 children undergoing cancer treatment in the U.S.
*As a nation, we spend over $14 BILLION per year on the space program, but only $35 MILLION on Childhood Cancer Research each year.
*There are 15 children diagnosed with cancer for every one child diagnosed with pediatric AIDS. Yet, the U.S. invests approximately $595,000 for research per victim of pediatric AIDS and only $20,000 for each victim of childhood cancer.
*Research funds are scarce as most money is diverted to well-publicized adult forms of cancer, such as breast and prostate.
*Right now, this second, somewhere in America, there are 7 children fighting for their lives who won't live through the day.

So, what can you do?
*Join Team Unite - http://www.teamunite.net to become a part of a unified voice against childhood cancer.
*Join people against childhood cancer (pac2) www.curechildhoodcancer.ing.com - to learn of efforts being made around the world to find a cure, raise awareness, and lend support.
*Eat at Chili's on Monday, September 28th, when Chili's will donate 100% of profits to cancer research
*Wear the color gold in support of kids with cancer!
*Let a family that's been touched by childhood cancer know you care and haven't forgotten about their struggles.
*Give Blood

Thanks for all the support.

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