Lauren is on day 7 of 12, of her 2nd round of chemo, phase II. She is taking the chemo Etoposide (liquid form). Tomorrow night she'll start taking the chemo Temador (capsule) along with the Etoposide. Then on Monday and Tuesday, we'll have to go to the hospital where they'll add the chemo Thiotepa (via IV) along with the Etoposide and Temador. She will then receive her stem cells back on Friday, at which time we'll start staying at the Ronald McDonald's House again.
So far she has shown no signs that she is even on chemo. Since the chemo has a cumulative affect and it takes awhile for it to hit the body, we expect by the week of Oct. 20th she will really be feeling the effects of the chemo and in fact, she is already scheduled (based on past experience) to be admitted into the hospital on Oct. 20th. However, yesterday she felt well enough to go to Disneyland and walked the whole time there, refusing to ride in her stroller. She did have an episode during lunch where she cried for 2 minutes complaining of a headache. If she hadn't had a CT scan on Monday we would really be freaking out. Hopefully it's a sign that her tumor is under attack.
Today, if both Lauren and Hilary are feeling up to it, they are going to make a surprise visit to Lauren's pre-school Olive Branch. This will be her last chance to visit until November.
The Nihei's: Our Story
On April 1, 2008, our 4-year-old daughter, Lauren, was diagnosed with a brain tumor. After her biopsy on April 8th it was determined that she had a bithalamic anaplastic astrocytoma with extension into her brain stem.
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
Thursday, October 9, 2008
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