With a broken heart, I write this. This is the hardest thing I've ever wrote. On Thursday, we lost Brooke. At Hilary's weekly baby doctor's appointment, the doctor couldn't find her heartbeat and was directed to go to the hospital where they removed her by C-section. It appears Brooke got her umbilical cord swapped around her neck and had past away sometime Wed. night, less than 9 days from when she was scheduled to be delivered. Brooke Hope Nihei was 6.9 lbs. 19 inches and was a perfectly developed beautiful baby girl. While I only got to hold her lifeless body, I loved her as much as my other two girls. I thought she looked like Marissa as a newborn, while Hilary thought she looked like Lauren. We are all devastated and are still trying to make sense of everything. This nightmare of a year keeps getting worse and worse, and I am not sure how much more our hearts can take.
Meanwhile, Lauren is still in the hospital. Her blood counts are at zero, but her blood tests showed she is trending up and they think we'll be able to go home tomorrow.
The Nihei's: Our Story
On April 1, 2008, our 4-year-old daughter, Lauren, was diagnosed with a brain tumor. After her biopsy on April 8th it was determined that she had a bithalamic anaplastic astrocytoma with extension into her brain stem.
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
Saturday, September 20, 2008
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