Lauren is home and is doing great. You can really tell she is feeling much better since she won't stop talking, which is music to our ears. She came home Sunday night. Her ANC (blood count) was 100, meaning she was considered super neutropenic (under 500 is considered super neutropenic, while anything over 1,500 is considered normal) and her body has no defense against infections. They allowed her to come home since her blood count was showing an upward improving trend. On Monday we had to take her back to CHLA for her weekly blood test (it might have been easier if they had just kept her in the hospital on Sunday, but oh well), this time her ANC was 3,000! Meaning she doesn't have to wear a mask in public, she can go to Disneyland, or the movies or Chuck-E-Cheese, well, maybe not Chuck-E-Cheese.
Tomorrow we have an appointment to meet with Dr. Finlay to go over the schedule for the 2nd cycle of chemo for Phase II, which we will be starting soon. So we won't have much time to enjoy her being in a better mood. The dosage for the cycle 2 will remain the same as the first, but since the chemo has a cumulative affect, it will get progressively harder on her body.
We told Lauren about Brooke on Friday, which she took very hard. She cried off and on all day. We told her she is in heaven and that she is our special angel and will always be there to watch over her and us.
The Nihei's: Our Story
On April 1, 2008, our 4-year-old daughter, Lauren, was diagnosed with a brain tumor. After her biopsy on April 8th it was determined that she had a bithalamic anaplastic astrocytoma with extension into her brain stem.
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
Tuesday, September 23, 2008
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