We're still here at the Ronald McDonald House (RMH).
In yesterday's blog, I was trying to describe the
ambiance of the place. After staying here and walking
around, the best description would be a disaster relief
center and/or a alcohol/drug rehab facility. I've
never been to either, but based on TV and movies,
that's the way I would imagine it. Families huddling
around tables, for the most part, keeping to
themselves. There is a section where the smokers hang
out. All the guys (myself included) are unshaven and
uncombed hair, or wearing a hat. Lots of people walking
around in their jammies. I think the biggest reason,
to me, as to why it feels like a rehab or disaster relief
center is due to everybody's body language: slumped
shoulders, people wandering around in silence or
talking to each other in hushed tones and they all have
that despaired look in their eyes like they are
afraid of what the future holds for them.
On a different note, Marissa is coming down with a cold,
and one of the rules of the RMH is absolutely no one
can stay here if they are sick and with
Lauren's blood count dropping, we can't risk Marissa being here
if she is getting sick. So Marissa and granny went home.
Now it's just Me, Hilary and Lauren. Tomorrow I have
to go to work so it'll just be Hilary and Lauren.
The Nihei's: Our Story
On April 1, 2008, our 4-year-old daughter, Lauren, was diagnosed with a brain tumor. After her biopsy on April 8th it was determined that she had a bithalamic anaplastic astrocytoma with extension into her brain stem.
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
Monday, September 15, 2008
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