The Nihei's: Our Story

On April 1, 2008, our 4-year-old daughter, Lauren, was diagnosed with a brain tumor. After her biopsy on April 8th it was determined that she had a bithalamic anaplastic astrocytoma with extension into her brain stem.

In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.

A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...

Story continues at bottom of page

Saturday, September 13, 2008

Fund Raiser: NTBS: Brain Tumor Walk and Angel Adventure

Auntie Sarah (Lauren's Auntie Say Say) and Lauren are planning to participate in the National Brain Tumor Society NTBS) Brain Tumor Walk and Angel Adventure. They have created Team Hope to raise money for NTBS. It's 5k fundraising walk and community day to support the brain tumor cause. It's going to be held on Oct. 18th in Huntington Beach. If you are interested in joining their team or would like to make a donation for this great cause please go to: http://www.firstgiving.com/lalasaysay
It would be awesome to have our family and friends together and to meet many of you,who we've never met before, who have been following Lauren's blog . We are looking forward to seeing you out there. Thanks for your support.

Auntie Say Say was recently diagnosed with a grade 2 oligoastrocytoma (brain tumor). On August 13, 2008 she underwent a left frontal craniotomy and tumor resection and is currently in the process of figuring out a treatment plan.

The National Brain Tumor Foundation is a non-profit organization serving people whose lives are affected by brain tumors (http://www.braintumor.org/AboutUs/).

Posted by admin at 11:05 AM

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