Lauren's blood test came back and her blood count was still good. Her port was de-accessed, meaning the nurse removed the IV needle and she was all set to go home from CHLA. Unfortunately, the nurse read the wrong blood test report. She read last week's blood test report. Today's test showed that both her blood and platelets were down and that she needs a blood transfusion (Thanks to the Tochihara's for donating both blood and platelets on Friday, we really appreciate it and the timing was perfect). So they'll have to access her port again. They re-applied the numbing cream on her port, but it takes about an hour to work, good thing it takes a little while for them to order and receive the blood. Our nurse felt really bad. But Lauren didn't complain, she is a trooper.
We also found out that one of her tests prior to the High Intensity Chemo is that she'll have to have her spine tapped to make sure the tumor did not spread. While the doctors don't expect this to happen, it's on the check list. We were told that she will be put under so she won't feel a thing, which is good since I've been told it can really hurt.
The Nihei's: Our Story
On April 1, 2008, our 4-year-old daughter, Lauren, was diagnosed with a brain tumor. After her biopsy on April 8th it was determined that she had a bithalamic anaplastic astrocytoma with extension into her brain stem.
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
Tuesday, August 5, 2008
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