The Nihei's: Our Story

On April 1, 2008, our 4-year-old daughter, Lauren, was diagnosed with a brain tumor. After her biopsy on April 8th it was determined that she had a bithalamic anaplastic astrocytoma with extension into her brain stem.

In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.

A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...

Story continues at bottom of page

Tuesday, May 6, 2008

We finally got to go home last night. Lauren could not wait to get out of there. On the way to the elevator, we hadn't see Lauren walk that fast in a long time. She was 10 yards ahead of us, speed walking. It was the funniest and cutest thing we've seen in a long time. It was so nice to be home and nice to have the whole family sleeping together in our queen-size bed again.

I made the mistake of arriving at the hospital when they were teaching Hilary how to give Lauren shots. Hilary will have to give Lauren a shot in the thigh every day (along with three pills and two liquid form medications). Both Hilary and the nurse wanted her to give me a practice shot (of saline). What could I say? I wanted to show Lauren that it didn't hurt and I didn't want Hilary to give Lauren a shot without at least doing one real shot. But seeing Hilary smiling as she came towards with me with a big needle, to give me a shot in the thigh, and me not being able to show any fear, was pretty terrifying. But I took it like a man...even though my thigh still hurts. Lauren will at least get some numbing cream before her shot.

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