The Nihei's: Our Story

On April 1, 2008, our 4-year-old daughter, Lauren, was diagnosed with a brain tumor. After her biopsy on April 8th it was determined that she had a bithalamic anaplastic astrocytoma with extension into her brain stem.

In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.

A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...

Story continues at bottom of page

Tuesday, April 6, 2010


From Gordon's Facebook Entries:

UPDATE:

Just spoke to the oncology team (without Dr. Finlay who is out of the country). They say the fact that Lauren is becoming responsive and breathing on her own is an improvement, but doesn't make a difference. They are saying that the tumor is growing and is changing into a grade 4.

They say that Lauren has been telling us she is done fighting (becoming withdrawn, not talking) for awhile now. Her body is giving out. They said it's been a miracle that she has lasted this long.

After allowing ourselves to believe in "hope," it is hard to let her go. It is our hope now that she can breathe well enough on her own to bring her home so that she can be in her own bed.
------------------------------------------------------------------------------------
Morning Facebook post:

Everyone's prayers must be working!!!

Lauren has shown some improvements. She does react to some stimuli, but does not follow command. While still on the machine, she appears to be doing some breathing on her own.

Keep the prayers coming. Thank you!

No comments: