Lauren enjoyed her first week of kindergarten. So far, so good. Her teacher, Mrs. Little, has been awesome. We can not say enough good things about her. She is fully aware of Lauren's condition and has really has been proactive in regards to her plans on keeping Lauren's environment safe. Once again we really feel blessed. Someone is definitely keeping watch over her.
On Thursday night, we went to a teacher meeting for all the students' parents. Mrs. Little had Hilary come up and talk about Lauren and explain why it was important to inform the school when their kids are sick, or have a runny nose. While it's not their problem Lauren has a weakened immune system (we weren't asking them to keep their kids home if they have a runny nose), but to just inform the school that their kid has a runny nose so that way the school can sit those students at different tables and so that Lauren can wear a mask. Mrs. Little is also thinking about having the sick and/or coughing kids wear a mask in class, not sure how that will go. I can imagine some parents not liking that.
This and that:
Weekend was great. Lauren and Marissa's cousins, Maddie and Baylor, from Northern California came down for a visit, since we never did get to go up north. It's so nice to see how well they all play together. Oh, it was also nice to see my sister and brother in-law too.
Lauren will be up at CHLA all day, Wed., getting chemo. She has been off chemo for so long now (almost a month and a half), that both Hilary and I are getting nervous. We don’t want to give that tumor any time to regroup and start growing again. We'll meet with Dr. Finlay in the morning and see what he has decided to do with the chemo, Irinotecan (she takes three: Temador, Avastin, and Irinotecan). Dr. Finlay thinks Lauren's pancreatitis might have been caused by the Irinotecan. If that is the cause, he might switch to a different chemo combo. Hopefully that is not the cause since there have been a lot of good results (other cases) with this combo of chemo.
The Nihei's: Our Story
On April 1, 2008, our 4-year-old daughter, Lauren, was diagnosed with a brain tumor. After her biopsy on April 8th it was determined that she had a bithalamic anaplastic astrocytoma with extension into her brain stem.
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
Monday, August 17, 2009
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