The Nihei's: Our Story

On April 1, 2008, our 4-year-old daughter, Lauren, was diagnosed with a brain tumor. After her biopsy on April 8th it was determined that she had a bithalamic anaplastic astrocytoma with extension into her brain stem.

In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.

A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...

Story continues at bottom of page

Thursday, June 18, 2009

Lauren was up at CHLA yesterday getting her chemo. What potentially could have been a long day due to getting there late, it was a 2+ hour commute to CHLA because of the "dumb" Lakers' parade (I'm a Clippers' Spirit fan!), it ended up not being too bad (they got home by 8 p.m.). Lauren did great. She didn't get or feel sick. In fact, she said had a good time (she just wished she wasn't attached to the IV pole), because all our favorite people (nurses, doctors, child life, PA) were there (all except for Anna Evans, PA, who I hear will be returning from maternity leave soon(Yeah!). Dr. Finlay came by to say "hi." He's been extra nice to us (not that he is never not nice to us), even asking Hilary how she is feeling, since Lauren spilled the beans that we are going to name the new baby after him. He also invited us to the HEAD Start party for all the patients and survivors that were on the Head Start protocol. Even though Lauren wasn't officially in the HEAD Start study, she still qualifies since she followed the protocol. Head Start is the high-dose chemo regiment she was on that was developed by Dr. Finlay. While it would have been nice to see and meet other survivors that went through the Head Start program, we're probably not going to go since it's in New York. Oh well.

Next MRI: August 5.

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