Now that she is back on Decadron (steroid), Lauren is doing great (knock on wood). She is taking .50 mg of Decadron and 15 mg of hydrocort ( 7.5 mg twice a day) daily. We'll lower her dosage of hydrocort probably in a week or so. The only draw back of her being on both Decadron and the Hydrocort is she is really puffy again. Her cheeks feel like water balloons.
Also, Lauren hair continues to grow back FAST! It's seems like it is growing in front of our eyes. Even though we have pictures of Lauren with hair throughout the house, I still have a hard time remembering or imagining her with hair.
Make-A-Wish people will becoming by the house tonight. Lauren still wants stuffed animals, wants to go on a Disney Cruise, and wants to meet George Strait (????). Since it is her wish, we're don't want to coach her or anything, unless you think making her watch the 2000 U.S. Open at Pebble Beach when Tiger Woods won by a record 15 strokes, is coaching. But if she picks playing a round of golf with Tiger Woods and her dad at Pebble Beach, what can I do? It will be interesting what she picks though. If you could have one wish in life, what would you pick (Other than 100 more wishes.)? Obviously, I would wish her tumor away. Like I mentioned before I'm a little reluctant for her use her wish while she is so young. I would imagine Lauren's interests and passions will change a lot between now and when she is 18 years old (Make-A-Wish only grants wishes for children ages 18 and under). But then again, as we found out recently in the world of oncology (with other families we know), things can change fast. We don't have the luxury of thinking too far ahead. We just have to enjoy the now.
The Nihei's: Our Story
On April 1, 2008, our 4-year-old daughter, Lauren, was diagnosed with a brain tumor. After her biopsy on April 8th it was determined that she had a bithalamic anaplastic astrocytoma with extension into her brain stem.
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
Thursday, February 19, 2009
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment