The Nihei's: Our Story

On April 1, 2008, our 4-year-old daughter, Lauren, was diagnosed with a brain tumor. After her biopsy on April 8th it was determined that she had a bithalamic anaplastic astrocytoma with extension into her brain stem.

In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.

A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...

Story continues at bottom of page

Friday, December 5, 2008

Lauren is out of the hospital and relaxing at the Ronald McDonald's House. Her counts are already going up!! Her ANC count is at 20 and still needs to reach 1,500 but it's a lot better than yesterday when it was at zero.

The McGowan's came by today to give platelets. Unfortunately, Debbie has tody wee veins and low iron, so she wasn't able to give blood or platelets, and Bill took an aspirin, so he was only able to give blood but not platelets. I also tried to give blood and platelets. About 5 minutes into the platelet collection, the machine started beeping and turned off. My blood wasn't coming out fast enough. Apparently your suppose to drink a lot of water and not suppose to have a lot of caffeine. Two cups of coffee and a medium diet coke for lunch is considered too much caffeine. So I got poked for nothing. Oh well. With Lauren's counts going up, she'll probably not need anymore more blood or platelets.

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