The Nihei's: Our Story

On April 1, 2008, our 4-year-old daughter, Lauren, was diagnosed with a brain tumor. After her biopsy on April 8th it was determined that she had a bithalamic anaplastic astrocytoma with extension into her brain stem.

In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.

A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...

Story continues at bottom of page

Friday, August 8, 2008

Lauren has been breathing fast. You can really see it in the way her
chest and stomach move. While it's within the "normal" range, it's a
change. So the doctor ordered X-rays for some time today. Also Lauren's
speech is again a little slurry, but not as bad as the last scare/time.
Not sure if it is due to the drugs she has been given at the hospital. A
lot of the drugs and the tranfusion (she got platelets yesterday) require
pre-medication. So she had to TAKE drugs to help her with the needed
drugs. She also developed a rash from one of the antibiotic or
pre-meds, or she could have had a reaction to the platelets. It's hard to tell.
At least the rash is mostly gone already.

I forgot to mention that Lauren's ANC count yesterday was 20 up from 10
as of Tuesday. It needs to increase above 1,800 before we can go home.
The good thing is once it starts going up, it usually goes up very
quickly. So we are not ruling out the chance that we might be able to
come home sometime this weekend. Of course, we know better than to
write anything in pen.

While Lauren is not particularly happy about being in the hospital
again and is very tired, she understand why she is there and is in good
spirits. Also it's hard to get any rest in a hospital since they take
her vital signs every four hours.

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