Update:
What a great weekend. Lauren's dog Belle, who has been staying with Grandma and Grandma Vernor, came to stay with us this weekend. Lauren really perks up when Belle is around. While daddy likes Belle staying at the in-laws, since he doesn't have to pick up her poop, he is beginning to warm up to the idea of keeping Belle, since she brings Lauren so much happiness.
The twins, Hannah and Hailey, came over on Saturday to play and swim. It was a nice treat since Lauren hadn't seen them since all of this started. Even better was that Lauren played with them the whole time. Even when she got tired she stayed social and sat with everybody. Lauren was feeling so good, she didn't take nap and stayed up way past her bedtime working on a coloring project (we bought her a pillow case coloring set), and when she was finally done, since it was still so hot, we went swimming even though it was past 10 o'clock. It was a nice family moment. The girls were still talking about it the next day, how we went swimming at night, oh, and how we caught June bugs.
On Sunday, since it was supposed to be cooler we went to Disney's California Adventure (Lauren wanted to try the new Toy Story ride) with the Shiu's (Russ, Kathy, Karly and Kamryn). While it might have been cooler than on Saturday, it was still in the high 90s. We never did make it onto Toy Story, there was no way we were going to wait an hour and a half in that heat. We only lasted a few hours there, but the girls still had a good time. We spent the rest of Sunday in the pool.
Monday: Today we have to start collecting Lauren's urine from 8 am to 8 pm and keeping it on ice. This is for her kidney test, which has to be tested every time before they start a new cycle (the next cycle of chemo is scheduled to start on Wed.). Hopefully this will work, if not, they will have to inject her with the radio-active stuff again, which means she won't be able to go near mommy for 3 days. This really upset her the last time.
Lauren's MRI is scheduled for 11:30 Tuesday morning. While the late appointment will allow us to sleep in and not have to be at the hospital at 5 am like the last time, it will make it tough, since they have to put her out for the MRI (she won't be able to stay still for the 15-20 minutes it takes), she can't eat or drink anything in the morning and Lauren "loves" her breakfast. But that's going to be the easy part, the hardest part will be waiting for the results.
For the rest of the week, Lauren will start her 3rd round of chemo on Wed. (three chemo, two by IV and one orally, as an out-patient), Thursday we'll have to go in (one by IV and one orally) and then she's just on Temador for three more days, which is taken by mouth. We'll be staying at a hotel Tuesday thru Thursday. Just to be near the hospital in case Lauren has a bad reaction and to make the commute easier for Lauren, since the chemo will make her tired and we won't have to keep waking her up at 5 in the morning to get to the hospital by 7:30. Grandma Vernor will be staying with us since I can't be at the hospital the whole time because I have to work, and Hilary, because of the chemo, can't help Lauren in the bathroom and can't sleep with her in case she has an accident (the chemo makes her so tired that she doesn't always wake up when she has to go potty), or gets sick or sweats. This is going to be a tough week, and not because of the MRI and chemo, but because Grandma Vernor really snores loud.
The Nihei's: Our Story
On April 1, 2008, our 4-year-old daughter, Lauren, was diagnosed with a brain tumor. After her biopsy on April 8th it was determined that she had a bithalamic anaplastic astrocytoma with extension into her brain stem.
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
Monday, June 23, 2008
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