Tuesday: Results of the stem cells harvesting came back. Of the 10 million stem cells needed we were only able to collect 860 thousand. So they said anticipate coming back on Thursday. Also, Lauren's platelet count was low, so she received a transfusion last night before we left.
Wednesday: We received some bad news this morning. Not real bad news,
but not good news. Dr. Patel did not think we'd be able to collect
enough stem cells today and did not think it was worth trying again
tomorrow. They will be removing the port after we're done today. We
are going to try again to harvest her stem cells after the next
(3rd) cycle. But this means Lauren is going to have to have surgery to
replace the port. They are not leaving the port in because it's uncomfortable. It's a temporary port and the third cycle won't be done for another 4 weeks or so.
Also they told us the best time to harvest stem cells is right after the chemo treatments when her blood count isdown. When her counts are low and begins to increase, this triggers her bone marrow to produce the stem cells. Lauren will have to have surgery again to replace the port.
At 3:15 pm, Lauren was done with the procedure, and she did great. She didn't complain once about the harvesting. We are now waiting to see if Lauren will need
another platelet transfusion and/or blood transfusion.
The Nihei's: Our Story
On April 1, 2008, our 4-year-old daughter, Lauren, was diagnosed with a brain tumor. After her biopsy on April 8th it was determined that she had a bithalamic anaplastic astrocytoma with extension into her brain stem.
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
Wednesday, June 11, 2008
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