Thursday night. They finally took the 2nd temporary port out. Lauren was a little afraid, but it came out easy and when they pulled it out she was more amazed of what was in her leg than any pain she felt. She said, "Is that it? That was in my leg?" It did bleed a lot. The doctor had to come back to the room 15 minutes later to help stop the bleeding. Lauren also received another transfusion of platelets.
Triple good news. Good news #1: Dr. Patel (pictured) called to let us know the result of Thursday's harvest. Tuesday they collected three bag from the harvest, which yielded 860k stem cells. Wed. they collected 7 bags, which yielded 2.86 million, on Thursday they collected 4 bags, which yielded 2.9 million stem cells. That's 1.9 million more than they were hoping for. I don't get it, but, yeah!
Good news #2: We got a container to collect Lauren's urine for her next kidney test for next-next week. This way Lauren doesn't have to take the radioactive stuff, which prevented her from going near mommy for three days. We just have to collect her urine for 24 hours, keeping it on ice the whole time.
Good news #3: We don't have to go back to CHLA until the 24th, which means we can spend some good family QT together.
The Nihei's: Our Story
On April 1, 2008, our 4-year-old daughter, Lauren, was diagnosed with a brain tumor. After her biopsy on April 8th it was determined that she had a bithalamic anaplastic astrocytoma with extension into her brain stem.
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
Friday, June 13, 2008
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