Blood transfusion went well. Lauren did have an allergic reaction to an antibiotic, which caused her to get a rash all over her body. Nobody seems to be very concerned though. We were discharged from CHOC around 9:15 pm last night.
This past stay at CHOC was one of our better visits. Lauren's roommate was a very cute, outgoing, and funny 4-year-old leukemia patient named Zoe. It was both cute and heart breaking to hear them discussing their ports, what chemo drugs they're on, and if it's in a pill form. Four year lds shouldn't be discussing drugs their daddy can't spell or pronounce. I think it was good for Lauren to talk to another girl her age going through something similar. We wish Zoe and her family the best of luck thru their "journey."
Today we went up to CHLA to meet with Dr. Finlay and for blood tests. The first thing we noticed with Dr. Finlay is his positive attitude and enthusiasm. This fact alone has put us at ease with our decision to transfer Lauren's care to CHLA. This is not a knock against the nursing or support staff at CHOC, which has been awesome. But it sure makes us feel better when the doctors think there is something they can do. We also got some good news from Dr. Finlay, the blood test showed Lauren doesn't need to get anymore shots from mom for awhile. Boy, did she have a big smile. We go back to CHLA on Friday for one last chemo "push" then she'll be off chemo until the first week of June.
We are looking forward to having the whole family together and hanging around the pool at the house.
The Nihei's: Our Story
On April 1, 2008, our 4-year-old daughter, Lauren, was diagnosed with a brain tumor. After her biopsy on April 8th it was determined that she had a bithalamic anaplastic astrocytoma with extension into her brain stem.
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
Wednesday, May 14, 2008
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