Not too bad of a day yesterday. The girls got to CHLA around 11 am and were out by 5:30 pm. Nurse Tina greeted them with Red Velvet Cupcakes. Of course, she had never had Red Velvet cupcakes when I'm there, not that I'm complaining or anything... well, maybe just a little bit. Lauren did great with her chemo, as she usually does. Knock on wood. She didn't get or feel sick, but she was tired though. She went to bed relatively early after taking her 3 nightly chemo capsules of Temador and slept through the night without incident even with a helicopter with its search light circling our neighborhood around 12 a.m. for an hour. I, on the other hand, didn’t get any sleep with Hilary waking me to tell me there is a helicopter circling our house and asking me if I locked the doors and then making me go check just in case, and then yelling down to me if everything is okay when I didn’t come back fast enough. But I was happy to see Hilary sleeping so soundly, snoring loudly away (I wonder where she gets that from - granny!), as I dragged myself off for work at 6 am this morning. Aiya!
It looks like Lauren's X-ray on her left ankle came back negative for a stress fracture (at least nothing obvious, the radiologist still needs to review it), which is good news. I was afraid Lauren's basketball career was going to be cut short after one practice. Personally, I think she's getting shin splints. I've been icing, heating, and massaging it every night along with some Tiger Balm. Lauren thinks maybe massaging her shoulders and neck will help with the pain she's been having there. I am sure she is going to ask me to plop grapes in her mouth next. It doesn't help that she has learned to snap her fingers.
Funny moment last night while watching American Idol. When KISS came out on stage, and they had a close-up of them, both girls simultaneously said, "what the heck….?"
The Nihei's: Our Story
On April 1, 2008, our 4-year-old daughter, Lauren, was diagnosed with a brain tumor. After her biopsy on April 8th it was determined that she had a bithalamic anaplastic astrocytoma with extension into her brain stem.
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
Thursday, May 21, 2009
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