The Nihei's: Our Story

On April 1, 2008, our 4-year-old daughter, Lauren, was diagnosed with a brain tumor. After her biopsy on April 8th it was determined that she had a bithalamic anaplastic astrocytoma with extension into her brain stem.

In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.

A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...

Story continues at bottom of page

Monday, April 6, 2009

We went to a memorial service last weekend to celebrate the life of 8-year-old Thomas. Thomas was diagnosed with a rare form of brain tumor in July 2008. He fought his battle with courage, strength, love, laughter; all the while comforting and telling jokes to those around him. He went through things that no person let alone a child should have to go through. All who had known him, or had met him knew that he was special. I think he touched more people in his short life than many have touched in their entire long lives. That was evident by the church that was filled with close to a thousand people. Family, friends, people that have known Thomas his whole life and some that have only met him over the last several months.

It was truly a hard and emotional day for us. It is really hard to explain the bond that oncology parents have with each other. We know what each other are going through and the feelings that we have all experienced. We have become family. Watching our babies go through such tough treatments, surgeries, hospital stays, MRIs, fevers, infections, all the medicine they take, countless shots and so on, all to save or extend their lives. Any one of us parents would trade places with our children in a heart beat. We are truly blessed by these amazing children of ours and what they endure so gracefully.

We are also blessed by such amazing nurses, doctors, nurses, assistants, and hospital staff, all who treat our children so wonderfully. I don't even think we express to them how much they mean to us and how important they have been through this whole experience.

Hilary

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