I wish, other than a cure for cancer and for Lauren to be cured, I wish, there was a way to get Lauren off her steroids. Steroids makes her so puffy and I hate to say it, but fat. It's tough watching her waddle around and struggle to climb up and down stairs. I am worried about how kids in her class might tease her when she starts kindergarten at the end of summer. I feel bad when she can't fit in any of her clothes. She tried on 10 different dresses yesterday because they either felt tight or were uncomfortable. I feel sad when she asks why her clothes don't fit her. She is only 5 years old (but wears size 6 and that is already too small for her), yet I struggle carrying her up to bed every night (her weight has increased 70% in a year). She has been on steroids for so long, her body has stopped producing
whatever chemical the body produces when its not on any steroids. So that's it. That's my wish and I just needed to vent. I don't want to use up my miracle on it since I need to save my miracle for her cure. It's just a wee wish.

Just found out that since Lauren has gained 10 lbs. since January, she
should be on 60 mg. of Temador nightly, instead of 50 mg. We're a
little freaked that she hasn't been getting the correct amount of chemo
for 3 months. Goes to show you that we (the parents) need to be
Lauren's advocates. While we are under the care of the best doctor and
nurses, it's still our responsibility to manage Lauren's treatment and
question everything. Ultimately, it our child's life at stake.

- Lauren is up at CHLA today for her bi-weekly chemo. Hopefully she'll have a better time than two weeks ago when her chemo made her sick. I anticipate she'll be there late since she had a late start this morning. She usually wakes up at 6:30 - 7ish, but slept in until 9 am. We didn't want to wake her. We figured she needed the rest.

- Auntie Say was up in SF last week to meet with her neuro-surgeon where she received some disappointing news. Her tumor, which was originally classified as a grade 2, has been reclassified as a grade 3, meaning it's more aggressive. I am not sure what this means in regard to treatment. I know that when it was originally classified as a grade 2, the neuro-surgeon didn't think she would need any additional treatment. I am not sure if that is the case anymore. She is going to meet with Dr. Finlay to discuss her next step.

- Just wanted to clear up a rumor. Apparently because of my story about how Lauren thought that when Hilary was sick and craving McDonalds, that she is pregnant, a few people have been inquiring about that lately. Hil's aunt from Canada called granny last night to ask if she were. Speaking of being pregnant, just wanted to congratulate Mike, Vicki, Kiera and Owen on their new baby son/brother, Liam. Liam was born yesterday, 9 lbs. something. He was the lightest of their three. Lauren wonders why Kiera is taller than her, since she is older than Kiera.