Lauren's physical therapy went well on Monday. After discussing with the physical therapist that Lauren's goal was to get a guinea pig... j/k, to be able to run faster than Marissa. Lauren thinks Marissa is the fastest girl she knows. In PT they are having Lauren walk up and down stairs without stopping. Usually the way Lauren has been going up stairs is by taking a step and stopping, taking another step and stopping. She's also doing a lot of stretching. The PT thinks Lauren may have to go to a motor skills specialist to help with her shaking. Her left hand shakes uncontrollably at times, usually when she picks things up with it.
The nice thing about Lauren's PT is it's at CHOC, which is a lot closer than CHLA, and also because we know a couple of families that go there. One of the people we were hoping to see is this amazing little girl named Zoe Hunter (5 years old). We shared a room with her when Lauren was still being treated a CHOC. Zoe is battling Leukemia, and after 6 months has just gotten out of isolation. So who does Hilary and Lauren see in the lobby? Zoe! But Lauren has a slight cold, so we needed to keep her away so they didn't get a chance to really visit with her. Also Zoe was hungry and wanted to get to the cafeteria and if there is one thing we know is you do not get in the way of a chemo patient on steroids and their food! But no big deal. Since Lauren will be going to CHOC twice a week, we'll have plenty of opportunities to visit with Zoe.
Btw: we asked Lauren last night if she wanted a guinea pig, she said, no.
Yesterday chemo went well too. She did not feel, or get sick. Nurse Danette did notice the shaking in Lauren's left hand and called our NP, Joyce. Apparently one of the side of effects of one of the chemos is shaking. I don't know anything more than that, like if it can become permanent, or a sign of something worse. Dr. Finlay doesn't seem to be too concerned about it.
The Nihei's: Our Story
On April 1, 2008, our 4-year-old daughter, Lauren, was diagnosed with a brain tumor. After her biopsy on April 8th it was determined that she had a bithalamic anaplastic astrocytoma with extension into her brain stem.
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
Thursday, March 26, 2009
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