Thankfully, Lauren seems to be doing much better. What a scary and stressful week. Even though Lauren is feeling better, counts have yet to drop (while we don't like or want them to drop, they will). Hil thinks Lauren will be admitted on Wednesday, I think Thursday, and Lauren, always the optimist, thinks she won't go back at all. We all hope she is right, but we don't want her to get her hope up.
We've started Lauren's GCSF shot on Saturday (given to her by Hilary) and they will continue for 10 days or until her counts go up (after they go down). She has an appointment for labs to check her blood counts. She had a blood transfusion on Friday, which seemed to help. She'll probably need a few more blood and platelet transfusions later this week.
We saw our friend Tish at the Ronald McDonald's House this past weekend. She has been staying at the RMH since July. Her son Thomas (7), who also has a tumor and was under the same Head Start Protocol as Lauren, but had to withdraw because the cancer spread to his spinal cord, received good news. I don't know all the facts or details other than the MRI on Friday was good and that he can now start the high intense chemo treatment, similar to Lauren's treatment, also followed by a bone/stem cell transplant/rescue. We're so happy to hear the good news. We parents with sick children, just need "Hope."
The Nihei's: Our Story
On April 1, 2008, our 4-year-old daughter, Lauren, was diagnosed with a brain tumor. After her biopsy on April 8th it was determined that she had a bithalamic anaplastic astrocytoma with extension into her brain stem.
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
Monday, December 1, 2008
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