The Nihei's: Our Story
On April 1, 2008, our 4-year-old daughter, Lauren, was diagnosed with a brain tumor. After her biopsy on April 8th it was determined that she had a bithalamic anaplastic astrocytoma with extension into her brain stem.
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
Lauren is finally HOME!! Yeah. She was discharged this morning at 9 am. The nurse said this is the earliest in the morning she has ever seen anybody discharged. I think the doctor felt bad, because she told Lauren last night she was going to be discharged, but she changed her mind. They wanted to observe Lauren to see how she did being off the antibiotics. Lauren was disappointed, but she accepted it without a fuss. She is awesome. Better safe than sorry.
For some reason, Lauren's count keep dropping. I think we're going to take her CHLA on Monday, even though we're not suppose to come back until Wed. for Lauren's MRI. CHOC thinks we should postpone the MRI for three weeks, but CHLA wants to proceed, they said three weeks is too long to wait.
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