Apparently I was wrong and Hilary was right (again). While I thought we were done attacking the tumor and that Lauren would be on maintenance chemo, Hilary just confirmed with Anna that we still need to kill off the low-grade portion of the tumor.
I have a sick feeling in my stomach. The sick feeling is not a bad feeling, it's just a "I'm disappointed" type of feeling. But, we'll find out more in regard to our game plan after the MRI on the 24th and our meeting with Dr. Finlay. Maybe this a
mute point and her next MRI shows we got our miracle and the tumor is vaporized. Miracles do happen. We're praying for one.
Lauren did have an appointment today at the day hospital for labs.
Her platelets are still dropping, but they didn't give her a
transfusion. They are hoping they'll go up on their own. Anna also
gave Lauren the green light to get her ears pierced (once her platelets
recovered), which I've reluctantly agreed too. Ever since Lauren's
cousin Kiera planted the idea of getting their ears pierced together in
her head, that is the only thing Lauren talks about. Hilary made a
good point that we don't want her to feel self conscience if someone were to
mistake her for a boy while her hair grows back. So that's fine. So
what's next? Make-up and a mini-skirt.
The Nihei's: Our Story
On April 1, 2008, our 4-year-old daughter, Lauren, was diagnosed with a brain tumor. After her biopsy on April 8th it was determined that she had a bithalamic anaplastic astrocytoma with extension into her brain stem.
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
Wednesday, December 10, 2008
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