Just when I was going to say that this has been the best round of chemo, that Lauren has done a great job, that she has not gotten, or felt sick and her energy level has been great...she woke up at 6 am this morning in a lot of pain. This was the most pain I've ever seen her in. She was crying, she threw up, she took a poop, and she asked for medicine. When does a 4-year-old ever ask for medicine? Thankfully, the pain was not coming from her head, but from her sternum area. I tried to ask her to describe the pain, if it was sharp pain like someone was sticking her with a pencil, or if it felt like someone was pushing down on her chest, all she'd tell me is that is hurts. She was hunched over in pain. In my untrained medical opinion, I am thinking the cause of the pain has something to do with either her port, which is located in the middle of her chest, right above her sternum or it has to do with her being constipated. As long as she has the port there will always be the risk that the port can become infected. And all the chemo and anti-nausea medication she is on causes constipation. So as I write this, Hilary, granny, Lauren and Marissa are on their way to CHLA. Lauren was scheduled to go to the hospital today to receive her next chemo via IV anyways. I'm not sure how they are going to access her now, since the pain is coming from the port area. Maybe they'll have to administer the chemo thru her arm, which won't be very fun.
The Nihei's: Our Story
On April 1, 2008, our 4-year-old daughter, Lauren, was diagnosed with a brain tumor. After her biopsy on April 8th it was determined that she had a bithalamic anaplastic astrocytoma with extension into her brain stem.
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
Monday, November 24, 2008
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