Lauren was admitted yesterday since she had a temperature and her ANC blood count is at zero (1,500 is considered normal). She has a runny nose and might have caught a cold from Marissa. She is getting three different antibiotics via IV. She'll probably be in the hospital until her counts start going up. Her leg is still sore from her fall, but is getting better. The doctors are not too concerned with it. We just need to monitor it.
Hil saw a family yesterday on the oncology floor (the floor Lauren is staying on) being lead into a private conference room. The mother was sobbing uncontrollably. She saw one of Dr. Finlay's assistants leading them in. It brought back a lot of memories of when Lauren was first diagnosed and it is a stark reminder of the tough road we face. Later, Hil saw them clearing out their child's room. It gave everybody a sick and bad feeling.
Granny and Marissa are back in town. Marissa appears to have gotten over her cold, and with Lauren in the hospital it's safe for her to stay at the Ronald McDonald's House. We're confining her to the room though. It's nice to have a room there so that we all don't have to commute everyday. Couldn't sleep last night though, I'm not sure if was because I was thinking of the other family or because of granny's snoring. I think it was a combination of both.
The Nihei's: Our Story
On April 1, 2008, our 4-year-old daughter, Lauren, was diagnosed with a brain tumor. After her biopsy on April 8th it was determined that she had a bithalamic anaplastic astrocytoma with extension into her brain stem.
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
Wednesday, September 17, 2008
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment