Lauren is still in the hospital, still attached to an IV bag, and is still getting heavy doses of antibiotics. ANC count is still at zero. Her platelets and white blood cells count are stable, but her hemoglobin's have dropped so they are thinking she'll have another blood transfusion today. None of the doctors or nurses seem concerned that her ANC is still at zero, so we're trying not to get to worried. They said it's to be expected since this is the end of the 4th round of chemo. One of the doctors told us yesterday that she'll probably be there until at least Friday, however, our nurse said we'll probably be discharged today. So we're not sure what's going on. But I wouldn't mind if they sent her home with her counts being at zero. Being coup'd up at home is better than being at the hospital. There's probably just as much germs at the hospital as there are at our house (or maybe not). But we don't mind being at the hospital when her count is so low since she is consistently being monitored by nurses and doctors. One less thing to worry about.
The only other negative would be if Lauren gets another fever and we have to rush her all the way back to CHLA. Also I am a little worried about Lauren getting a blood transfusion right before we go home since the nurses at the day hospital said that it's common for patients to have a spike in temperature (fever) after getting a blood transfusion, which has happened a couple of times in the past. So many pros and cons. So we'll see what happens.
The Nihei's: Our Story
On April 1, 2008, our 4-year-old daughter, Lauren, was diagnosed with a brain tumor. After her biopsy on April 8th it was determined that she had a bithalamic anaplastic astrocytoma with extension into her brain stem.
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
Tuesday, August 12, 2008
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