Just got home from celebratory dinner at Black Angus. Lauren of course had her lobster. It’s now a tradition after each successful MRI. We don’t want to take any chances and change anything.
We met with Dr. Finlay today. He appeared genuinely excited about the results of Lauren’s MRI, and not just trying to make us feel good. He said in his and the radiologist’s opinion, it appears the tumor has shrunk, a little. Also, prior to the MRI, they injected her with a contrast, that show chemical changes in the brain. Based on these signals, they are able to tell what the tumor is doing, if it’s dying, dead or growing. These signals are picked up by the MRI. Based on these signals from Lauren’s MRI, Dr. Finlay believes her tumor has been reduced from a high grade tumor (fast growing) to a low grade tumor (slow growing). He said so far, Lauren’s progress is exceeding his expectations. Now that the tumor is stable, the next step is to kill it. He also indicated that the protocol Lauren is on (remember Lauren is not in the clinical trial study) will not be available as a clinical trial until 2012. So Lauren is getting state of the art treatment.
We did run into a minor snag. In order to begin the next step there is a check list of tests that needed to be done (hearing, eye, kidneys, etc.). One of the tests was to have her teeth checked out and requiring the dentist to sign off that her teeth are healthy. However, since her two bottom teeth are loose, he won’t give his okay, which means we can’t proceed to the next phase. The fear is the teeth would fall out when her counts (platelets and white blood cells) are at their lowest, and we would not be able to stop the bleeding or she could get an infection. The only way he’ll sign off is if we extract the two front bottom teeth, which we are going to have done on Friday.
The Nihei's: Our Story
On April 1, 2008, our 4-year-old daughter, Lauren, was diagnosed with a brain tumor. After her biopsy on April 8th it was determined that she had a bithalamic anaplastic astrocytoma with extension into her brain stem.
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
Wednesday, August 27, 2008
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