Apparrently one of my in-laws are upset after reading last night's blog, that I did not convey accurately enough the feeling of excitement and hope that radiated from Dr. Finlay, as he discussed Lauren's progress. Hilary described Dr. Finlay's mood as almost giddy when he spoke to us about her MRI. Then later when Lauren walked by him in the hallway talking to two young assumed to be doctors, he said excitedly to them, "here she is now. This is the little girl I was speaking about…" So Dr. Finlay appeared really excited about Lauren's progress, therefore I apologize, if I did not convey enough excitement in last night's post. I think it has to do with playing sports. To me it feels like we just won one game, while we still have the rest of the season to go. I don't want to lose concentration until we have won the championship. I'm just want to remain focus on the main goal, which is to vaporize the tumor, or at least kill it dead. Hopefully that makes sense.
Lauren is very excited about having her teeth pulled out tomorrow. It's all in the way you present it. Hopefully she is still excited about it during and after wards. As long as there is no complications, she'll get her first dose of chemo for Phase II. It is the belief of everyone, since the chemo is not expected to affect her until later next week, that it will be enough time for her mouth to heal before her blood counts start dropping.
Other things I forgot to mention last night (I was tired and it was late..., for me).
- Dr. Finlay was surprised how much hair Lauren still had.
- Lauren puff'd (passed gas) in Nurse Tina's face as she was de-accessing her on Monday. I told Lauren I was going to post what she did on her blog, she got really embarrassed, and said nooo. Oops. Never mind.
- Our social worker (yes, we have an assigned social worker), is trying to get us into the Ronald McDonald House during Lauren's stem cell rescue portion of the treatment which requires us to stay locally (within 15 minutes of the hospital) for 10-days. The problem is the Ronald McDonald House only allows 2 adults, and since Granny needs to stay with us ( Hilary needs to be careful around Lauren when she is on chemo and is not suppose to come in contact with any of Lauren's bodily fluids and I need to work), that will make three adults. But our social worker thinks there is enough extenuating circumstances (Hil being pregnant, we live so far away, granny needs to stay) that she is confident she can get them to make an exception. While I imagine the Ronald McDonald's House to be painted red, white and yellow, with golden arches in the front and a clown with red hair running the place, the social workers said it's brand new and is like a 4-star luxury hotel with sleep comfort beds, so I'm excited. The best part is it'll only cost us $20-$25 a day. We just can't have any big parties or alcohol. I guess we shouldn't be expecting a visit from the Fitzsimmons.
- Since Aunti Say Say asked for it, I've updated Lauren's bio.
The Nihei's: Our Story
On April 1, 2008, our 4-year-old daughter, Lauren, was diagnosed with a brain tumor. After her biopsy on April 8th it was determined that she had a bithalamic anaplastic astrocytoma with extension into her brain stem.
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
Thursday, August 28, 2008
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