Update for Wednesday
Also, I received a call today from my health insurance at the hospital. They wanted to inform me that they have approved CHLA request for the stem cell harvesting procedure. As she was telling me this I looked over at Lauren who was being unhooked from the machine and I said, "Thank you, that's good to know."
Update for Thursday.
The harvesting is done. Yeah!! They wanted 3 bags for harvest, the technician wanted 7. They made her stop at 4 bags at 1:30. So we got an extra hour and a 1/2 on the machine and one more bag than they wanted, which can't hurt. We are now waiting for the blood test results to see if Lauren will need a transfusion of blood or platelets. If not, they will finally remove the port in her leg. This can be done in the room and we were told it's pretty simple. They'll just cut the stitches and pull the two tubes sticking out of her leg. The tubes extend 4 inches in and up her leg. Then they'll just apply pressure for 15 minutes. I asked if she'll have two holes in her vein or artery and they said that is why they apply pressure.
The Nihei's: Our Story
On April 1, 2008, our 4-year-old daughter, Lauren, was diagnosed with a brain tumor. After her biopsy on April 8th it was determined that she had a bithalamic anaplastic astrocytoma with extension into her brain stem.
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
Thursday, June 12, 2008
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