We met with Dr. Finlay of Children's Hospital of Los Angeles. He said if we
were to proceed with the radiation treatment on Lauren like the other
doctors are recommending, he guarantees Lauren's brain will be severely
handicapped for the rest of her life.
We are now going on a more aggressive game plan --
Phase 1: She have four different types of chemo over 2 months, aimed to
stop the growth of the tumor and if the tumor stops growing, then
we'll proceed to phase 2.
Phase 2: This is the more aggressive phase. They bombard her body
with a year supply of chemo in 6 days hoping to vaporize the tumor and any
other tumor that might have spread. However, this will require her to
have a bone marrow transplant after.
We feel much more confident and comfortable with this doctor. He
explained everything better so we have a much better understanding of
everything. Good thing we got a 2nd opinion.
Also, Lauren is on her way back to the hospital. She was throwing up
all night, she also had a headache and she has that same look in her
eyes that she had before the shunt was placed. The new doc thought
she'll probably need another shunt on the other side. Poor kid.
The Nihei's: Our Story
On April 1, 2008, our 4-year-old daughter, Lauren, was diagnosed with a brain tumor. After her biopsy on April 8th it was determined that she had a bithalamic anaplastic astrocytoma with extension into her brain stem.
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
Thursday, April 24, 2008
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