The Nihei's: Our Story
On April 1, 2008, our 4-year-old daughter, Lauren, was diagnosed with a brain tumor. After her biopsy on April 8th it was determined that she had a bithalamic anaplastic astrocytoma with extension into her brain stem.
In the beginning of March we noticed a personality change in Lauren who normally is a very outgoing and happy-go-lucky kid. She became very clingy and shy. She didn't want to talk on the phone anymore, or play on the slide with the other kids at pre-school. By mid-March, Lauren started complaining about headaches. Her pediatrician thought it might be a sinus infection or that she may need glasses. He put her on antibiotics and we made an eye appointment.
A few days later when she started holding her head funny and her headaches returned we insisted on a CT scan. That's when her pediatrician sent us to the ER at Children's Hospital of Orange County (CHOC) for a CT scan, and when our world was turned upside down and our nightmare began...
Story continues at bottom of page
April 21, 2008. Lauren got out of the hospital on Saturday
and she had a port implanted in her chest. This will make drawing
blood and hooking up an IV easier.
Sunday was a good day. Lauren was in great spirits. Her and Marissa
Were playing and joking around all day yesterday.
We have an appointment tomorrow to meet with the radiation doctor and then another appointment with the oncology team. we'll find out what the risk of radiation will have on the unborn baby. We are also going up to LA on Thursday to meet with Dr. Finlay, a highly regarded oncologist.
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